Wednesday, December 31, 2008

Appt. in Augusta

Today was Brecken's appt with the kidney specialist. It did not go like we thought it would. John and I both believed that we were going to get great news and not have to go back. Well, that didn't happen.

First, she has a condition called, hydronephrosis. You can read a more medical description online, but here is what is happening with Brecken.
A bladder is supposed to contract and let urine out. Sometime, urine goes back up into the kidneys. This can cause infections. The dr. was concerned about getting this taken care of first, so at our next visit they will do some tests on her bladder to figure out why this is happening. We didn't discuss procedures, so I have no idea what they would have to do to correct the problem. They will put her on anitbiotics eventually, to take care of any infection.
The main reason they do not want her to get an infection is because the ultrasound also should that she has many small cyst formations on both kidneys. While he couldn't say 100% that this was Polycystic Kidney Disease, he felt very sure it was. Needless to say, John and I were stunned. As of her last bloodwork they were still functioning properly. They did more work today and we will pray that her creatnine levels are still the same. That means they are functioning.
I will explain what I know the best way, and I am really still a little fuzzy on all the details, b/c we just got home. Right now there is nothing we can do. We will see him every month to monitor the levels and the cysts. There are two types of PKD. One doesn't usually effect someone until they are older. The other is evident in babies/children. We aren't sure which she has. I am not sure if we will ever be able to know until it happens.
Monitoring the kidneys every month with show any change. PKD is a genetic disorder, and this gene could "switch on" at any time which will cause the cyst to grow, and eventually lead to her kidneys shutting down. Just writing this makes my eyes fill with tears b/c I have no way of knowing what is going to happen to my sweet baby.
She can be treated with dialysis at 6 mo. and would be elligable for a transplant but not until she is 30 lbs. This is all assuming that PKD starts to take over. In 3-4 mo. she will have a CT scan I guess to see more clearly what we are dealing with.
Is there a chance that this isn't PKD? I am sure there is, but I don't think it is likely at this point. Our dr. was very hopeful and reassured us that he does this everyday and Brecken will be taken care of.
My mind is still in a whirlwind and I am not sure what to think yet. The only think I can think about right now is what if she doesn't make it to have treatment. Call me Debbie Downer, but I am a little low on good spirits. I am praying that I can have a better attitude and be hopeful, but right now, I am exhausted...in every sense of the word.
Thank you for keeping us in your prayers and if you don't mind, please keep us on your list. This is going to be a very long road which I am very prepared to take, I just have to figure out how to get started.
Brecken is such a wonderful blessing and my heart is aching so bad right now. I know there are people reading this who have never met us and those who have raised us. We love you all and can't thank you enough for traveling this rocky road we have been on for the past two years. I wanted so bad to start 09 with such a different feeling. We can't have everything we want though I guess.
I wish everyone a Happy New Year and many wonderful blessings.

Monday, December 29, 2008

Picture catch up...

I hope everyone had a Merry Christmas. Ours was very peaceful and relaxing. We mainly just enjoyed being with our family and friends. These pictures are from the past week or two. I know Grandmama and Aunt Mary are itchin' to see their girls...
I always download them in the wrong order, so they are pretty much in reverse date. You get the idea though.

Kayden riding her new bike from GG and Granddaddy!

Brecken and me on Christmas Day.


The family


The girls on Christmas Day.



Sweet girl in the same outfit Kayden wore when she was a few months old.




Daddy, Terri and KK.



Kayden in her HSM cheerleading outfit. The girl can cheer!



Trying it out


The easel that Santa brought


Grandmama and PawPaw sent a HSM microphone...Her daddy loves that :)



Santa forgot how to spell Merry...or he just ran out of R's



What a sweet face



Brecken posin' outside.

Tuesday, December 23, 2008

Christmas...

I really do love Christmas. Even with all the hustle and bustle, I love it. I love the eating and family getting together. I love Family Christmas with my mom's side. This year, I have loved buying for Kayden and seeing her get so excited when talking about Santa. I love that she is so young and innocent and has only asked for binoculars. Although I give him a hard time, I love listening to Christmas music thanks to John. We have been listening to it since Halloween! My favorite music is an old Alabama Christmas. My parents have a record which we always listen to while putting up the tree and decorating. And usually on Christmas day while we are playing cards. Kayden has really enjoyed driving around looking at Christmas lights. We did this when I was little too. John and I have always spent Christmas morning at our own home and we will continue that tradition, espcecially now that we have kids. He wants to read 'Twas the Night Before Christmas' to Kayden. Since she is just now old enough to understand, this will be the first of many years. I lvoe the excitement of seeing others open their gifts. Did I mention I love all the food. I love seeing all the gifts my parents recieve from their kids (they are both teachers). And eating all of dad's chocolate, b/c he doesn't eat it. I love calling the Eason's on Christmas Eve and singing " We wish you a Merry Christmas". I love all the cards and pictures I get in the mail. I am like a kid going to the mailbox everyday. I love shopping for stocking stuffers. I love to sit and look at my tree and all the special ornaments.

And I love knowing that I am blessed with such a great family and group of friends. My children are healthy and happy. My husband treats me like I am the best woman in the world. My parents and grandparents love me and always go above and beyond to help me. My Jesus loved me enough to die for me, and give me an eternity in Heaven. Doesn't get better than that...

Merry Christmas from our blessed home to yours!

Saturday, December 20, 2008

In the Pink corner, weighing in at...

9 lbs 12 oz! Brecken girl is getting a little chubby! She has the cutest little cheeks and has the most heart melting smile.
She was 21 1/2 in. long. She wasn't really high on the perentiles, but they said she looked good and was gaining like she should be. This was just her 2 mo. check up and we go back on the 31st to the specialist.
I love this stage b/c she can notice me and smile at me whenever I am holding her. She also likes to smile at Kayden.
She got 3 shots yesterday and did good right after them but then about noon yesterday, she was super fussy. I mean, for 4 hours all she did was cry or sleep in my arms. Lots of crying. I think gas was a little of the problem, too. But she slept good, so all is well!



Janice came home from the hospital on Thursday. She hasn't been sleeping well, but they gave her some pain medicine yesterday (which she was supposed to leave the hospital with and they didn't fill it). Mr. Garry said she was resting better today. I am not sure if they every decided if the stroke was b/c of a blood clot or her blood pressure. She is at home though, so we are very thankful. Thanks for your concerns and prayers.

Thursday, December 18, 2008

Good News

Janice was able to get moved out of ICU yesterday and she should be going home today or tomorrow. They still aren't sure if the stroke was caused by a blood clot or her blood pressure. John is home and talked to her last night and she sounded really good. We are so thankful that she is doing better.

Tuesday, December 16, 2008

Update on Janice

Thanks to everyone for your comments and prayers for John's mom. She is doing good as in, she knows who everyone is and is able to communicate. She isn't feeling that great though. There really isn't much news. She will probably get moved out of ICU today, but she is still having some headaches. The tests results that they have aren't providing any helpful info. and I think they are still waiting on others to come back. I think everyone is just a little frustrated b/c they just don't know why it happened and not getting answers quick enough. John is still there also.
Keep praying...

Sunday, December 14, 2008

Baby girl is 2 mo.

Brecken is growing so fast! She is really starting to fill out too. I think she changes everyday! Just a few things I want to remember about right now...
-her eyes are still blue
-I think her hair is going to be lighter, b/c some new hair is growing in and looks light
-we can get her to smile a lot more and she does it on her own a lot more
-she likes when Kayden talks to her
-she still sleeps best in her carseat
-she doesn't really like to sleep at all
-most people think she looks like me
-other say, My dad or John's dad
-she probably weighs close to 9 lbs (we will find out for sure on Friday)
-she is usually happy...until bedtime rolls around
-she loves to be held
-we love her very much and feel very blessed to have her in our life




Also, please keep Janice (John's mom) in your prayers. She had a stroke yesterday. She is doing great today and seems to be back to normal. She has had tests run today and hopefully this was a one time thing and they can find out why it happened. John went up there last night to be with her, so keep him in your prayers as he travels. We love our Grandmama so much and are so glad she is better.

Rudolph the red nosed reindeer...

I never really realize how much of an accent we have until I hear us on video!
video

Friday, December 05, 2008

plug...

Just a little plug to help a sista out. My sister is participating in the Polar Bear Plunge to raise money for the Special Olympics. Check out Terri's blog to see more and maybe help her out. Watch the video too!

Thursday, December 04, 2008

Out of the mouths of toddlers...

Disclaimer...this is a converstation between me and Kayden about breastfeeding...feel free stop here if this topic gives you the heebie geebies!
I was taking the girls to the dr. on Friday, and in the car, this was just one of the converstations...

kayden: Mommy, where are we going?
me: We are going to the dr.
kayden: why?
me: (for the 100th time) Because we need to get you some medicine and Brecken some medicine.
kayden: (after a few seconds) Mommy, do you have medicine in your boobies?
me: No, just milk.
kayden: How did you get milk in your boobies?
me: Whenever a Mommy has a baby, she just has it in there.
kayden: Who put it there?
me: God did. (really trying not to laugh outloud)
kayden: I don't have milk in my boobies.
me: No, but when you are a mommy, you will.
kayden: Mine aren't big enough yet.
me: No, they aren't.
kayden: I don't want milk in my boobies.
me: Why not?
kayden: Because I don't want anyone to put it in there.

She cracks me up all the time. There are no 3 year old conversations around our house...they are all adult. The girls have been batteling a cough for a week or so. Not fun. Hopefully, they are on the up side.
On a side night, my husband is wonderful! I bought him a massage last year for christmas (which he hadn't used) and it expires this month. He told me yesterday he was going to make an appt. and use it. He called me while I was in town yesterday and asked what I had planned today, and I said nothing and he told me I had a massage at 11 today. I really wanted him to use it, but hey, an hour by myself for someone to rub the knots out of my back and shoulders...ok! What a sweetie.
And a few pictures just for the fun of it. I can't believe Brecken is almost 2 mo. old!!!!!!! Wow, time is flying.

















Monday, December 01, 2008

Happy Thanksgiving

After our doctor appt. last Monday we headed to Pigeon Forge to meet up with John's sister and her family. They rented a chalet for the week so we all spend the holiday there. We had a great time and just enjoyed doing as little as possible. We did some sight seeing, which was beautiful. Thanks again Mary and George! These are in no order, sorry.
Thanks to everyone who checked on Brecken. We are so thankful for the good news and give God all the glory for our little girl.



Brecken does like HU, despite her expression! I just love the shirt!


Brecken's "bed"...the only place she will sleep at night!



One of her many expressions.


Paw Paw and KK rockin' on the porch.



Our nosey visitor.



Can you find Kayden?





The kiddos






Me and Kayden playing in the ice.







Aunt Mary filming the fun.





Eric and Hannah slippin' and a slidin'





Riding the carousel






The girls with Aunt Mary








Our front porch






the view





Another view from our porch